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Developing Data Governance Agreements with Indigenous Communities in Canada: Toward Equitable Tuberculosis Programming, Research, and Reconciliation

2022

Love, R.P., Hardy, B.-J., Heffernan, C., Heyd, A., Cardinal-Grant, M., Sparling, L., Healy, B., Smylie, J., & Long, R.

Drexel University & Harvard University

Description

The authors share their experiences and lessons learned while developing and implementing data governance agreements with select First Nations and Métis partners in relation to tuberculosis prevention and care. They argue that such agreements can act as catalysts for Indigenous-led strategic planning and decision-making. 

Link to Resource

Developing Data Governance Agreements with Indigenous Communities in Canada: Toward Equitable Tuberculosis Programming, Research, and Reconciliation.

Love, R.P., Hardy, B.-J., Heffernan, C., Heyd, A., Cardinal-Grant, M., Sparling, L., Healy, B., Smylie, J., & Long, R. (2022). Developing data governance agreements with Indigenous communities in Canada: Toward equitable tuberculosis programming, research, and reconciliation. Health and Human Rights Journal, 24(1), 21, 34. 


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